Suffolk Reporter

Caitlyn Michiels, a ninth-grade student at William Floyd High School and founder of the nonprofit Caitlyn’s Vision, recently participated in an event with Suffolk County Legislator Jim Mazzarella. The occasion marked the illumination of the H. Lee Dennison Building in green to honor Rare Disease Day in Suffolk County.

Caitlyn is recognized for her advocacy work on behalf of children with visual impairments. Earlier this year, she proposed to Legislator Mazzarella that the last day of February be officially recognized as Rare Disease Day in Suffolk County. Her efforts led to legislation being introduced by Mazzarella, which directed the Suffolk County Department of Public Works to illuminate the county’s executive offices in green, raising awareness for rare diseases.

Caitlyn's journey into advocacy began when she was diagnosed with Anterior Bilateral Uveitis at age 8. This condition is a rare eye disease and a leading cause of childhood blindness. Determined to make an impact, Caitlyn founded Caitlyn’s Vision, launched fundraising campaigns, collected used eyeglasses, and championed initiatives focused on children's eye health.

Her previous achievements include advocating for August as Children’s Eye Health and Safety Awareness Month in Suffolk County in 2019 and donating specialized light covers to aid visually-impaired students in 2020. In 2024, she worked towards inclusive playgrounds featuring bright colors and textured edges for children with visual impairments and disabilities.

At just 14 years old, Caitlyn has now added another accomplishment by successfully advocating for the official recognition of Rare Disease Day locally.

“I was once someone with a rare disease who didn’t have support. I never want anyone to feel the way I did,” said Caitlyn. “Lighting the building shows these patients that Suffolk County cares for and supports them. In order to bring awareness to research, we need to keep the conversations going. I am thankful for my partner, Legislator Mazzarella, and all the legislators, for their support.”

“Caitlyn is a true inspiration to young people everywhere,” said Legislator Mazzarella. “She has never let her diagnosis define her. Instead, she has turned her challenges into a mission to help others live better lives. Caitlyn is someone our entire community can be proud of.”

Rare Disease Day is an internationally-recognized initiative aimed at advancing equity in healthcare for those living with rare diseases since its inception in 2008. Observed annually on February 28 (or February 29 during leap years), it symbolizes uniqueness through its zebra motif.

The green lighting choice honored Caitlyn’s Vision's signature color.

Throughout her academic career, Caitlin attended Moriches Elementary School and William Floyd Middle School before enrolling at William Floyd High School.